Stephen’s physician and principal investigator, Dr. Sylvia Stockler, Professor and Head of the Division of Biochemical Diseases in the UBC Department of Pediatrics, is leading the research to develop a better understanding of Morquio B. Together with Dr. Stockler, the Priests have started to compile valuable patient information for the world’s first comprehensive registry of Morquio B. The registry aims to capture all the cases of Morquio B worldwide. While it will provide scientists with a wealth of knowledge, this information could also create a critical mass of data that may help raise government and industry awareness of Morquio B. The registry will also facilitate future clinical trials by enabling communication between researchers, patients, and physicians.

We encourage you to consider supporting Dr. Stockler and her team of talented researchers to uncover the mysteries of Morquio B, and advance our understanding towards finding a cure.